Monthly Archives: April 2016

YOU’RE FIRED!

For anyone with chronic pain you get to this point where you just want to fire whatever hurts. Yesterday my right leg was spasming so badly that I wanted to just remove it, put it in the corner for awhile let it do it’s own thing and then when it was done pick it back up. It hurt so badly I wanted to cry. Crying doesn’t help however. It makes me just feel worthless. I feel powerless over the pain, the cramping, the spasm. I just watched as my leg seemed to have a life of it’s own. I tried massaging it, I tried taking my knee brace off hoping for some kind of relief. I even tried heat, ice and any other trick that I have ever used for relief, but nothing was working yesterday. I felt totally powerless over my right leg.

So I was venting about how I just wanted to fire it. I just wanted to look at my right leg tell it YOU’RE FIRED! You cannot hold up your end of the deal, sorry I will have to have you replaced. If you wish to reapply once you get your act together you may, but for now you are terminated. I had this picture of Donald Trump and the TV show Apprentice in my head where he fires people. It did make me giggle. The leg spasms are so frustrating to me because they have been going on since 2013 and I think right now it’s a combination of the low potassium (which I have to get my blood re-checked later this week) and the back damage. If the potassium is still low I might lose my mind. 1 pill it’s low, 2 pills it’s low, and then 3 pills it’s still low? You’ve got to be kidding me! If on 3 pills it’s still low we’ve got to try something else because I’m not going to keep taking more and more potassium pills hoping it goes up. I’ve been eating potassium rich foods like they are going out of style, but the most recent leg spasms are making me think the potassium is still low.

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Butterflies

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I really like butterflies. So yesterday after we got my hair cut which it needed to be cut, we went into retail chain shop that has a bit of everything. You can buy everything from food to furniture. So first thing I made sure to do was turn my back on which Mom asked me if I was okay to walk in the store and I told her I was because I’ve learned I gotta turn my back on for prevention. If I turn my back on I will last longer. If I try to turn my back on once it starts hurting its not as effective. Learning how to work with my body verses against it has been giving me a better quality of life, now if we could just get my body to work with me we would be cooking with Crisco® as the saying goes!

So this is my favorite time of year to find items with butterflies on them because it’s spring so all sorts of home decor comes out with butterflies! So yesterday we found a new sign for the kitchen that says “Welcome to Jennifer’s Kitchen” with butterflies, and these butterflies that have LEDs in them that you stick to the window and they light up! I was all giddy! I seriously act like a 4 year old some times! So last night I light one up on the window and I am putting dinner away and I seriously turn and think WHAT IS FLASHING IN THE WINDOW!!!!! Then I calm down and realize..it’s just my new butterfly! I start laughing and wifey looks at me and goes what are you laughing about? So I admit to my butterflies freaking me out and she laughs and shakes her head at me. Hey, at least I can admit that I freaked myself out!

We also got a new shepard’s hook that has a butterfly on it for outside that I am excited about too because hey the more butterflies the better! They bring me so much joy. I am looking forward to the warm weather, the garden that wifey plants and fresh food from the farmer’s market (and our garden of course!). The warmer weather will also hopefully mean less pain days, but time will tell!

Shoes

So after you have had major back surgery there are lots of things you used to be able to do that you can no longer do. One of these things is tie your shoes. So after the first surgery I wore Velcro® shoes, but I didn’t like them. I was so used to this one brand and style of shoe that of course had laces that every other style of shoe felt wrong. Also the Velcro® shoes just made me feel unstable. I had been used to wearing non-slip, oil resistant soles and the Velcro® ones seemed to be made for little old men in the nursing homes. I know lots of people wear Velcro® shoes but every time I wore them I really felt much older than I am. So I started trying to figure out a solution for how to get back in my old brand of shoes, the ones that I had grown to love so much, the ones I felt comfortable in. So one day I am reading in a blog and the blog writer had been given a product to test, she liked it, so I buy it. I have been wearing Zubits® for about 6 months now and they are the answer to my problem.

I added Zubits® to my favorite pair of shoes and now I don’t have to worry about lacing them! It really was the solution I was looking for. I have them set up so I can slip my foot in and out of the shoe because that works for me, the magnet is strong enough (I wear I size 3) that the shoes stay snug on my feet. I really can’t say enough positive things about them. I often have people ask me about them because they notice that my shoes aren’t tied, but they aren’t the normal no-lace products they have seen either. So I tell them what they are.

So right now Zubits® is having a 40% off limited time sale on their website and I would recommend you checking them out.

Homemade Subway and Amy Winehouse

So apparently people will make what used to be called a “sandwich” and call it homemade Subway now. Yes people this is a thing now…yes I am being totally serious. So wifey and I were discussing this this morning before she left for work as she was showing me pictures on Buzzfeed and then tonight we were still laughing about other homemade restaurant foods. Now I want to point out that any sandwich is classified as  Homemade Subway including those made on plain white bread, not just those made on sub rolls..to which I was VERY CONFUSED!!! I mean if you are going to be calling it homemade Subway I would think only sandwiches that you can actually buy AT SUBWAY would count, but apparently this is NOT the case. So wifey was talking about I’m going to make some spaghetti and make me some Homemade Olive Garden, or some tacos and have some Homemade Taco Bell. I mean why not?

So then she showed me a picture of a Drag Queen and said that some Drag Queens can pull off a trashy look, some cannot. In the picture the Drag Queen looked like Amy Winehouse, so me being silly go “Why haven’t we heard any new music from Amy Winehouse??” Of course I start giggling while I say this which totally gives up that I’m being serious in my posing of the question, but eh I tried! We really have lost some really great musicians too early.

So tomorrow I am thinking I am going to make some Homemade Subway for lunch I mean since apparently you can use any bread and any toppings I figure I can use whatever I find and it will count! I mean I could put hot fudge syrup on their but as long as it’s between two pieces of bread it counts as Homemade Subway.

Evil Eye

So if you have been following along you will know that I am rather bitter about having to take 3 potassium supplement pills a day right now. I was on 1 pill a day at the beginning of March, but when I got my one way ticket to the ER (thanks to my fabulous cardiologist) we found out my potassium levels are low. So when I went to my PCP to talk about my ER visit he raised the supplement to 2 tabs a day with follow-up blood work in 1 week. I did the follow up blood work and my potassium levels are the SAME!! So now I am on 3 pills a day….needless to say I am a bit cranky about this…so I told the nurse very politely that I would need a new script which I thought he had done, but they didn’t give me at the pharmacy when I picked up meds last week. So she said let me call them and talk to them. SURE!! I mean that makes my life a LOT easier!!! So she talks to them and tells them they have to fill it, so it got filled ASAP! Power of persuasion! So she gets back on the line tells me that since I had just had it filled that’s why they didn’t fill it, and I told her I understood that part, but with taking 2 and now having to take 3 pills, I was going to run out a lot faster than my original taking 1 pill a day. So we got that all squared away.

So last night I go to pick it up…Now mind you it’s late, I’ve had physical therapy already so I’m a bit punchy at this point….

*Up walks way to perky sales associate*

Me- I’m here to pick up a prescription for *insert information*

Sales associate (SA)-Okay can I have your date of birth?

Me-*information*

SA-Okay let me get that for you!

*goes gets the prescription comes back*

SA-Do you have any questions for the pharmicist?

Me-Nope I’ve been taking these long enough and at the rate I’m going I’ll be taking a bunch more because the stupid potassium level won’t go up so now I’m on 3 pills a day!

SA- Umm….this say to take 2 pills a day…

Me- *laughs* Yeah that was before he got the blood work back! See I was on 1 pill a day and my level was *insert number* then he told me to take 2 pills a day and wrote that script and told me to get my blood checked and it’s still *insert number* so now we’re up to 3 pills a day! YAY ME! I feel like I won the lotto! So I have to get my blood checked again, so if it doesn’t go up I’ll be seeing you again soon for more! *insert more laughing*

SA- Well let’s hope that this does the trick.

So I smile sweetly thinking chica you have no clue, you have no clue. I really am sick of this potassium CRAP!!

Rain, heartburn and apple cider vinegar…

I hurt, I’m sore and I just want a nap! So the rain is causing me to hurt even more than I have been. It’s POURING, even the cat is running for her life! The rain hits the windows and the noise scares her. You couldn’t even see the house next to us it was raining so hard. The cat went and hid under the bed until the rain stopped. We just laughed a bit, and watched the rain. I’m glad my appointment is later in the day. Hopefully the sun will choose to peak out.

I have the worse heartburn again. I don’t get it often but every once in awhile I will get it and it is the worse! I really dislike it and since I only get it once in awhile I take a couple tablespoons of raw organic apple cider vinegar in some water. Everyone always asks me how can you do that? I laugh and say I’ve had some pretty gross alcoholic shots in my day and I figure if I can down those I can drink this! I really don’t think it’s that bad and you don’t have to put it in that much water- the water is to help dilute it so it’s not so hard on your teeth. I will take it a couple of days and my heartburn will clear up and I’ll be good to go again. I have a feeling the increased potassium pills are to blame this go round because diet wise I have not been eating foods that trigger it.

Still trying to figure out this whole low potassium issue. Doctors keep blaming medication, I’m not convinced. I think its something else of course I don’t have a medical degree so what do I know? I will say that if the number comes back the same on 3 pills a day I am going to say to the doctor he needs to do other blood work because if on 1 pill its this number and on 2 pills its this number and then on 3 pills its the same number something else is going on. It shouldn’t stay the same number when you are increasing the supplement.

So we will see I will keep eating all those wonderful potassium rich foods and see what we got in a week. Hopefully the number has improved and we can move forward if not I’m not sure what plan B will be besides more blood work because something has got to give, when my potassium is low my legs spasm and that just isn’t a happy situation for anyone especially ME!

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Good signs

So I got my tests results and they were positive results. The Nuclear Stress Test matched the 2 previous ones so that is a positive in my world. Matching is good. I felt like saying Tic-Tac-Toe three in a row! The echocardiogram was good too! The heart is going back to normal size, not quite back to normal size, but getting there. Doctor wants to see me back in July so I’ll see him right before my neck surgery. He did give me a letter to give my neurosurgeon to tell him that from a cardiac standpoint I am good to go.

As far as the blood thinners he says I can come off of them, but suggests I go on a low dose aspirin to keep the blood thin to try and prevent another clot from forming. He and I also discussed that I am at a really high risk for developing another clot after this next surgery which I know. This is nothing new, BUT I cannot be afraid of it either. The moral of the story is I could develop another blood clot at any time. I am educated now, I know the signs now. I am much better versed in what to look for which is good.

So doctor has been having me take 2 potassium pills to try and raise my potassium level up, but it didn’t work, so now I’m going to take 3 potassium pills for the next week. I’m not sure what the plan will be if 3 pills don’t work. I still want to know why my potassium is low with taking the supplements. I get that the doc thinks its the blood pressure meds, but I’m not convinced. I really think it’s something else. I think this little experiment will be good because if he raises it to 3 and the potassium doesn’t budge I’m going to say to him okay what else could it be because you’ve tripled the potassium and my level is staying the same something is going on!

The weather was nice and pretty and then it got COLD! I don’t want it to be cold, I’m done with cold. I want nice and pretty! I like nice and pretty! Wifey is going to be planting the garden soon, I’m excited! Life is good. Pain levels are high due to the changing weather patterns, stimulator is on more often than its not, but I try to make the best of it. My hips are misaligned again and I’m leaning to the right, so I’m trying to be mindful and stand up straight, but it’s hard when I’m tired I fall into old habits. Plus just being stiff from everything else. But I’m upright, so that’s a plus!