Monthly Archives: November 2016

Crazy life and test results

Moving in general sucks, but not being able to help with the moving really sucks. This is the first time that I have moved since being injured. I keep being reminded of how little I can do. I can’t pack because that involves bending, lifting, squatting, or a long list of movements that I physically cannot perform right now. Then I am reminded that when we are actually moving I won’t be able to help there either because oh yeah I can’t lift anything…so yeah…. But I am able to supervise and help with the massive purging that we are doing before we move.

I also got the results back on my genetic testing. So I do NOT have Factor V Leiden which is what my specialists thought I had. I do have a genetic mutation that can cause blood clotting. But it’s a lesser known one. I am also fortunate enough to have 2 variations of the gene..yeah you know me the overachiever! So the hematologist is going to be doing more testing on me when I go back next year to check some other things. This does make me happy that we did the testing. I think knowing that extra piece of the puzzle.

I am starting to feel empowered getting one more piece to a possible one million…one billion..maybe even one trillion piece puzzle! I mean every test that brings us closer to figuring out what the answer is, how we can prevent another incident like last year would be great. I really don’t want another massive blood clot, however my story has helped three people very near and dear to me seek medical help for what they thought were blood clots in their legs. All three times it was cellulitis in varying degrees but in two of the cases the people almost lost their legs to the infection. In one case the person went to the ER because of my story they feared it was a blood clot and they knew how deadly they are and went verses waiting for a doctor’s appointment.

If one person can be saved from my experience then my story, my experience then I feel like I have contributed. Sure I would have rather NOT gone through an almost deadly saddle pulmonary embolism, but I can’t change the past. I can however use my experience, strength and hope to help others!

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