Another big holiday today and I woke up multiple times in pain. The pollen is out in full force so the allergies are starting to kick up, I think part of that is we had the windows open to air out the house a bit yesterday. Our weirdo cat got to sit in the window sill and look outside for a bit.
She likes to look at all the birds she doesn’t get to eat for dinner…I mean she is a cat after all! She also looks at the squirrels and anything else that might go past the window. Wifey is working on making a prayer/meditation space in the office, so she was moving furniture around. I cannot help her since I have some damage to my spine and cannot lift anything. She is making progress. I know it will be awesome when it is all finished.
So we are having family over for Easter and I am tired before we even start which isn’t that usual for me. I did not sleep very well last night. Wifey and I were discussing the sleep function on the Fitbit® and I said to her I don’t want to wear one because I really don’t want to know how little I sleep. I already get the apnea report in the morning, and sometimes I cry over that. I don’t need another measure of how crappy my sleep is right now due to the pain, and fibromyalgia. I also keep cracking my neck right now which if you are just joining us my C5 and C6 are bone on bone and I am getting those fused this summer. We are waiting to get cardiac testing done and some clearances before we make surgical plans in May for the surgery. I’ve had 3 major spinal surgeries and because of my saddle pulmonary emboli in October this one is going to be a pain in the butt because now I have to have a lot more of my specialist sign off.
So today is Easter the day that the Lord rose from the dead. We celebrate eternal life. I maybe in pain today but I’m happy to be spending time with family. I enjoy spending family time, and we have an Easter bunny! Otis my 6 year old bunny, loves Easter too, I mean how could he not? BUT that being said we do recognize the true meaning of this holiday. We are thankful for time with family, we rejoice in salvation and remember why Jesus died on the cross.
I hope that everyone has a very blessed day. I hope that everyone has a low pain to pain free day (if possible).
Ahhh it’s that time of year where Mother Nature is bipolar and the temperatures outside have gone from 70s to today the high will be 54. Yeah, fun times or as I like to call it pneumonia weather! Yesterday my chest was bothering me which I have been told is normal. Today my chest is hurting me, which I am wondering because of the wet crazy weather we are having if I am coming down with pneumonia again. So when I was in ICU the nurse asked me about if I had gotten a flu shot, no, do you want one no. Did you get a pneumonia shot? No and I apparently have pneumonia…do you want a pneumonia shot? I think its a little late for that one! So I take that as a no too then…YES! That would be a no, then I start laughing and then it hurt and I regretted laughing, of course I was on oxygen at the time and that helped, but it still hurt.
So on Christmas my brother in law was sick he had a cold, then yesterday I was holding the nephew who was cranky and had a fever but we’re pretty sure he’s just teething. I think I need a shirt that says “Keep your sickness, I’m good!” I know it’s that time of year, and trust me I would have held the nephew just like I did yesterday and cuddled him because that’s what he needed. I used to do the same thing when I worked daycare and even when I taught I would comfort kids when they are sick because that’s what you do. Of course when I taught if they had a fever they went to the nurse, but during allergy season the kids feel bad but they can come to school they just sneeze a lot.
I just keep washing my hands and hope that I don’t get pneumonia again, once was enough thank you very much. I also get bronchitis a lot so we watch out for that too, being asthmatic my lungs don’t like to breathe and now that I have a blood clot trying to help slow them down…. All is well. It’s almost the end of 2015, 2016 will be here before we all know it and I am excited about the fresh start. New year new goals, new adventures. New life lessons right?
So I used to not be a purse wielding type of gal. One Christmas I was upset with my grandmother for thinking I was actually. As I’ve gotten older and wiser, or maybe just older….I started carrying around a purse. I think part of it is that I just have more CRAP. I mean when you are younger you don’t have much to carry with you. Then you get your driver’s license, then comes the credit card. Then comes the loyalty card to every store you have ever stepped foot into or even walked past, I mean have I even stepped foot into that store? Maybe once WHY do I have a loyalty card? Am I even LOYAL to them? Oh wait I remember there was that cashier who looked at me with their sad brown eyes and asked pretty please on that one day back in 2001…yes that’s why I have that card and I keep it in my wallet in the off chance that I MIGHT decide to walk back into that store. Doesn’t matter that I have not in the last 14 years walked back into that store, nor thought about that store unless I was cleaning my wallet, but what if I decide on some cold windy day to breeze back in there, I want to be prepared!
Actually what had happened is this! So I have this serious kind of deadly allergy to Lysol. Yes, you read that right Lysol as in the cleaning product. I am allergic to clean. I will die if you spray it near me, I go into anaphylaxis so I have to carry around an Epipen. Well I also have to carry around an inhaler because yeah my lungs suck and I have asthma, well I also now carry around the wand to turn my spinal cord stimulator on and off so by the time you put those items in my small purse the thing is almost full. Well then you gotta add my wallet with the loyalty cards from every store that I have ever passed since 2001 and I have to have a few mints in case I get nauseous plus the lip balm, the eyeglass cloth and my keys and yeah the purse is busting at the seems. So my beautiful wife bought me a new purse today.
So we go and we’re shopping for a new purse while her car gets a much needed oil change. Well we don’t want to get a really big purse for me because I don’t want to carry around more than I should, but I want to have room for all those things I need like every loyalty card from 2001. So we actually found a purse that has 2 compartments so I can put the Epipen, inhaler and wand in one, and then the wallet and everything else in the other which is perfect. I am really happy and its only a little bigger than what I had which is exactly what we were going for. I actually found what I wanted…I think we need to play the lottery!
So yesterday I ventured out to Food Lion! Yes, I went on a VERY short shopping trip with the wifey. We needed the essentials, you know milk, eggs, half and half (especially after the whole eggs incident which if you missed that blog you can read it here Would you like some coffee to go with your cream?) and COFFEE!! Yup in my word coffee goes on the essentials list. Oh yeah I needed bananas too. Bananas go on that list because of my blood pressure medicine. So anyways…we go to the grocery store, we get a cart which they got new shiny black ones. They have 2 types of shopping carts little ones for those quick trips and the big ones that say take me so you spend a couple hundred dollars. Now don’t get me wrong in the little one you can easily spend a hundred, but less space means you tend to fill it up faster which means you tend to leave faster! hahaha So we have our list of items we need so this will be a quick trip for me and my healing back.
So we get to the coffee aisle and I tell my wife I want Breakfast Blend. She informs me she was reading that the lighter roasts have more caffeine in them, and I immediately say to her “Well when I only get 2 cups a day I want them to COUNT!!” and then I smile and laugh. I am sensitive to caffeine so I have to be careful how much I have and when I have it. So my 2 cups of coffee I drink in the morning is the only caffeine I have for the day. I stopped drinking soda in January of this year and even with the soda I usually drank caffeine free varieties anyways.
There was this one time when I was still working so this was awhile ago that with my lunch at 11am I decided to drink a Dr. Pepper10. I had drank Diet Dr. Peppers with my lunch before and the caffeine was out of my system in time for me to sleep, so I didn’t think much of it…this was my MISTAKE. Dr. Pepper10 has a LOT of caffeine in it, more than Mountain Dew. So at 3am that same day I am still bouncing off the walls. Jenna who was my girlfriend at this point is ready to murder me because I am talking a mile a minute and bouncing off the walls. I had to be back at work at 7am too….It must have been true love that not only did she let me live, but we went on to be married!
I will say after that little event, we set up ground rules about caffeine and how much I was allowed. Needless to say I am no longer allowed to drink Dr. Pepper10! I cannot tell you how much I apologized after I came down from my caffeine high. I did tell Jenna that I really had no idea that Dr. Pepper10 would have such a drastically HIGHER caffeine count than the Diet Dr. Pepper, and I was just as shocked as she was that it affected me in that way. We also have a running joke about me drinking another Dr. Pepper10…hahahah
I called the surgeon’s office told the nurse about the rash, he ordered a steroid pack for my rash so hopefully that helps the itching because I really don’t want to have to resort to oven mitts on my hands!
So I have weird allergies, I’ve known this for a LOOONG time. Well apparently I am allergic to the steri strips they put over my incisions so I have a lovely rash on my back. Plus I have a rash from the adhesive from the covering over my picc line to make sure it stayed in place. So I am trying desperately NOT to scratch. I’m about ready to duct tape oven mitts to my hands like they do to kids with chicken pox!
The issue with me and benedryl is that it hypes me up verses puts me to sleep. So I take it and I’m ready to run a marathon…okay I don’t run. Actually if you see me running you better start running because something bad is definitely in progress like zombie apocalypse bad. I once had a doctor tell me I had the heart of a marathon runner, I just needed to lose the weight so I had a body to match and I looked at him and go sooo how about I do nothing and we call it even? He just shook his head.
Overall I am healing nicely, besides the rash, everything else is good. We are using creams and antihistamines to try and get the rash to go away. I am going to set up an appointment to have my stimulator programmed next week so I have more than 1 program to chose from for pain management. Life is good. Surgery went well. I haven’t fallen overboard yet. I am still a little off kilter. Showers still make me a bit queasy, but we’re working on that too. Can’t complain because overall I’m GOOOOD!