I am having one of those days I expect to find my cellphone in the fridge..yup I just don’t know which end is up. I mean I keep walking into a room and then stop to think why was I walking in here in the first place…I know this is just the fibromyalgia, but geez! Brain fog is something I still have not gotten used to which I’m not sure you are supposed to, I mean I know it is part of the condition, but forgetting why you go into a room should just be a side effect of old age. I’m too young for this!
I have not been sleeping well which might be the fibromyalgia, might be my sleep conditions, might be the back issues, might be my neck, etc I have so much going on right now that it’s hard to say why I’m not sleeping, but it’s getting old. I really want to sleep more, but then I look on the cpap machine and realize I’m back to my 7.5 hours. I used to consistently get 7.5 hours, and then I was getting a little more and it was awesome, now I’m back to 7.5 hours.
So the heart rate is going up and down and I am feeling like I’m on a really bad ride that I don’t want to be on. Can someone please tell my heart that what ever carnival ride it put me on, I didn’t buy the ticket? I like the lazy river ride please not the shake them up and let them loose one! When I was a child we went to the fair and they put me on one of those rides that they spin you around and you go around in a circle I started turning green so they stopped the ride so I could get off! They knew I needed to get off before I puked!
The joys of the neurological issues is that I feel carsick all the time so that plus the dizziness from the heart issues is NOT FUN! I want a refund on this carnival I want the fun one! Next time I’m picking the field trip! I want to have fun not feel like I am going to fall over at every turn.
So we learned a few things yesterday during my physical therapy session a) my competitive nature will make me go farther than I probably should and b) my heart rate can and will go over 170 doing the exercises if I allow myself to be pushed. So I was working with the new guy, and he does know most of the medical history, he did know about the nuclear stress test, the tachycardia and the heart issues. What he doesn’t know about me is my competitive nature and that if you say to me oh you can do 2 more, I’ll do 4. So we got my heart rate up to 170 and today my hamstrings are sore from the exercises yesterday.
So I am resting today to allow everything to relax and repair from my session. Last night my knees kept buckling and I almost fell multiple times, so that wasn’t very happy either. I know part of that was that I was so tired from physical therapy, the other part of that was that we pushed my body too far. My heart rate was 170 and my oxygen levels were low and at one point I got dizzy. This is not a combination that is healthy. I am familiar with this combination due to the blood clot, but it’s not healthy. I also today am having some mild chest pains which I am chalking up to my increased heart rate yesterday.
So I talked to my doctor about my ER visit at the beginning of the month the cardiac testing that has been done and what will be done soon. He asked if they will be looking at the electrical element to the heart, I told him I don’t know yet. He suggested that might be the next step since the plumbing is looking good, but my heart rate is not, maybe looking at the electrical aspect of the heart is where we need to look since the blood pressure is spot on. So we shall see. It also looks like I will be coming off the blood thinners in the next month which I am HAPPY about!! YAY for BROCCOLI! I will be able to eat as much as I want without having to worry about INR levels! I am so excited about that you guys have no idea! I am going to be eating green smoothies and all the vitamin K foods, I might turn into Kermit the Frog for a bit from overdosing on greens..but I’ve missed being able to eat them to my heart’s content!
I was thinking about physical therapy and part of the problem with me is I am really competitive. As a child I did soccer, swim team and I did gymnastics for a short period of time. I mainly did soccer and swim team. If you tell me oh come on you can do 2 more, I will do 4 more just to prove you wrong, but then I’ll pay dearly for that. My heart rate going up so high and me almost passing out that was me being stubborn and not stopping when I should have. Later me almost falling and my knees buckling was not good. I need to learn to say no. I know my regular doctor was not happy you could read his face. There is a fine line and I went to far. The sad part was we didn’t do that much yesterday in the grand scheme of things which is why I think the new doc didn’t realize how far he was pushing me.
I think internal clocks should have a snooze button! I mean you should be able to tap your butt and get an extra five minutes of sleep…or something right? I mean it works on regular clocks! So this morning my beautiful internal clock woke me up at 5 freakin’ thirty! I was like I think you missed the memo where we SPRUNG forward so in no universe does this even MAKE SENSE!! I should not be awoken THIS EARLY! This is too early for even the SUN to be up! I mean at least let the bird be THINKING of being awake before me. Nope everything was asleep, the sun, the birds it was DARK. The only thing that was awake was me and my funky breathing, I wear a mask for the sleep apnea and the mask was making a funny noise so I flipped over and adjusted it because if I was going to be awake I was NOT going to be annoyed by some cross between a whistle and a popping noise. So I flipped over tugged at my mask a bit cursed under my breath at my internal clock a BUNCH, and tried to go back to sleep.
I think my internal clock thinks this is a game because then at 6 freakin’ thirty it woke me up AGAIN, THIS time it was because my arm was asleep. So I re-positioned myself, cursed my internal clock some more because at this point I am highly annoyed that I have been awoke twice before my normal 7am and tried to go back to sleep. So then I woke up a third and final time around 7:30am which was much more acceptable to my terms and conditions as found on page 10 paragraph 3 line 4.
So I got up made some coffee which I won’t be allowed to drink for the next 2 days because I’m having cardiac testing on Wednesday and they don’t let you have caffeine 24 hours before the test! I would rant and rave about the injustness of this and have they seen me without caffeine but the answer is yes multiple times so I might as well save my breath! So I’ll do that test and then I’ll have a similar test done so I’ll have to go through this all again soon enough. Which I’m like eh whatever! It’s all good really! I need to get the answers on the crazy heartbeats so we can figure out the best treatment plan. I can survive without coffee I just choose NOT to!
Happy Pi Day!! I did not forget, I am excited! I always love Pi Day and today is Rounded Pi Day and if you don’t know what that means you are not a math nerd, but we love you anyways. Today is 3/14/16 and if you round Pi you get 3.1416 so its Rounded Pi Day. So enjoy a slice of pie in honor of Pi day!
So ever since that deadly blood clot..well the doctors said it was deadly, I say it was just a pain in the butt blood clot personally! My heart rate has been a hair high. So tachycardia is when your heart rate gets to be above 100 beats per minute and this morning after my shower I wasn’t feeling good so I checked it and I was going at 140. Yeah… just a little on the tachycardic side of life. My oxygen levels at that point were 97% so that wasn’t too bad. I have been noticing an increased amount of fatigue and so I have been spot checking my heart rate and my oxygen levels and what I am noticing is that my heart rate will be just over 100 beats per minute, but the oxygen levels will be at 88% which is not healthy. So of course from being in the hospital with that almost deadly blood clot I stop whatever I am doing, take some slow deep breaths to bring my oxygen levels back up to an acceptable range. What I’m wondering however is how often my oxygen levels are dropping down to unhealthy levels without me really realizing it.
I know that sitting down my heart rate has been in the normal range, but pretty much as soon as I get up, I am tachycardic at this point, but not as bad as I was when everything first happened. I used to always be in the 130-140 range, now it seems I’m only in that range when I am really active. Which of course should be interesting at physical therapy this week, because they are going to try rehab exercises with extreme caution of course. If the heart rate won’t cooperate then we will go back to the drawing board and do more of just the stem and manual manipulation/massage.
April will be here soon and I am actually looking forward to having the echocardigram done so we can see what is up with my heart! I want to hopefully get answers, and get some more direction on how to proceed from here. Of course there is always risk that with the test there will be more questions than answers, but I am willing to take that risk at this point. I know there is something rotten in Denmark, I’m just not sure what!