So we had over 4 inches of rain fall this month! CRAZY! I hope the gardens everywhere are SOAKING IT UP! I mean I want lots of fresh veggies at the local farmer’s markets, because someone should be benefiting from all this rain, rain and yeah MORE rain! The wifey planted a small garden for us and she has a few more plants to get in, but all this rain has made that a bit of a difficult task!
My knees have been rather swollen, I noticed last night they were about twice their normal size, they still have a nice click, click, click, if I was Dorthy I wouldn’t have to click my heels, my knees should do it! I could just close my eyes and bend my knees “There’s no place like home, there’s no place like home!”
I really am over being sore. I had to turn the spinal cord stimulator off for a bit earlier to give my stomach muscles a break. I have had my stimulator turned up higher than normal because I am in more pain, so my stomach muscles can feel the buzzing which normally they don’t. So I can only take that for so long and then I have to give them a break.
I do like the stimulator and I am glad that I have it, if only it covered my WHOLE back I would really be in business! I mean my upper back and lower back I wouldn’t complain. Actually they are working on a wireless one that can be put in to do other regions and I do believe they will be able to do neurocord stimulator all over the body in the next few years. So who knows maybe in the next 10 years I will have the ability to have it over my whole back….
For now I am going to enjoy the coverage on my low back and legs. Try to cover up the really annoying nerve pain in my feet and enjoy life because life is too short!
So in addition to all the pain my face is red hot…or at least feels like it’s burning up. Now wifey seems to disagree with me on this, but I feel like my face is burning up, but I do agree that to the touch it does not feel as hot as I feel internally…if that makes sense. My temperature does not register this, it actually has been lower than normal. My cheeks have been redder than normal, so I think you can see it, but maybe it’s just me.
I am just finishing the antibiotics for the cyst that I have. My knees are not cooperating (I know what else is new on that front). My neck has really been bothering me, even more than normal I see the doctor in 2 weeks to schedule surgery. My back is bothering me and today I have a migraine. Oh yeah I am just loving life today!
My neighbor came over to chat and commented that I looked tired, and I know I do, I feel tired. I have been randomly falling asleep at the computer again, I will lose time which is always disconcerting. I think this is playing into my neck bothering me more than normal. I have found myself in odd angles which I’m sure isn’t healthy for my neck. I have checked my CPAP read outs every morning and most mornings they are decent and I’m sure that most sleep apnea patients would be pleased with mine, but something is just not right. I don’t know what is going on with me, but something is wrong.
I go in for thyroid re-check and potassium re-check tomorrow and maybe something in the blood work will help clue the doctors in. I am so tired of feeling crappy and hurting. I feel like I am losing a battle I didn’t sign up to fight. Of course that is the joy of having an autoimmune disease, you are literally battling yourself. Your body has decided to go to war with itself and destroy some piece of itself and you are stuck on both sides.
Yeah my knees are really bothering me no surprise. My back is bothering me no surprise. My neck is really bothering me no surprise. I am sitting on the couch with my feet up, spinal cord stimulator on, knees are taped because I was at physical therapy yesterday and hoping I can get some relief from the pain. Luckily because I have had several doctor appointments this week I have plenty of shows to catch up on! See looking at the positives!
I worked at physical therapy and I am hoping that we can get my knees stronger. I am getting frustrated because we seem to keep going back and forth between the two knees one gets a bit stronger and I sprain the other, etc. This sprain on the left is worse than they have been. I just want to give up, but I can’t! I know that I just need to keep wearing the braces, keep doing the physical therapy exercises and just see what happens in the next 8 weeks.
A positive attitude will get you a lot farther in life than a negative one. I think I need to start memorizing some new jokes however. I am starting to run out of them! I mean you can only tell the regular ones so many times before people know all the punchlines. I really do encourage everyone to keep a gratitude journal, and list 5 things that you are grateful for each day. Some days my list is harder to make than others, but I still do it because when you are focused on the good it’s easier to get through the day.
1 knee…2 knees..1 brace…2 braces…up, down…all around. So I had the appointment about the sprained knee and the good news is it does not appear that I tore the meniscus. It looks like I have an MCL sprain in the LEFT knee to match the MCL sprain in the RIGHT knee. Well at least I MATCH…at least I am consistent. I cried. I am in pain, I don’t know what else to do. I had my knee braced and I still sprained it. Doc told me to just keep what I am doing keep both knees braced, keep in physical therapy and he will see me in another six weeks.
When I walked into the office I was losing my balance which isn’t anything new. I have balance issues some of it is physical, some of it is neurological. So the nurses behind the desk asked if I needed a wheelchair and I told them no and explained that some of this was physical from me spraining my knee last week and some of it was neurological and as long as I keep a sense of grounding I should be okay. Which I love people’s facial expressions because there are microburst that you can’t control as well and you could see the gears turning as they are trying to decide if someone who just readily admitted to neurological issues should be trusted to stand on their own two feet.
Which at this point I probably should be wrapped in bubbled wrap for my own protection. I can have a “FRAGILE” sticker places on my butt and you might have to special order the helmet since I have a big head..I mean size wise…yeah I know ego too, but seriously we have a heck of a time finding hats that will fit my BIG head.
Anything that will ward off another injury because I am just sick and tired of being broken.
Mother Nature needs to stop all this COLD WEATHER!!! I mean this morning my right arm and elbow hurts. It’s hard when you have so many chronic pain issues, fibromyalgia, chronic pain syndrome, etc. I woke up this morning and my elbow hurt! I mean really?! I think it’s probably a combination of the cold weather and the fact that I push up using my arm because of my back. It’s the same thing with my hips being out of alignment because my knees are in braces, when they pop then my hip tends to get out of alignment. I also tend to lean to one side when my back hurts. I try really hard to keep good posture because I do know how important it is, but I am human after all!
I straightened my knee out and I heard a really loud POP! Ah the joys of having knee caps that don’t want to stay PUT! I really wish they would however. Is it too much to ask for my body parts to stay where they are supposed to stay? I mean I shouldn’t have to say to the knee cap stay knee cap, stay..good knee cap! The physical therapy is helping, I know that it will take time to get all the muscle groups to be strong enough to take over for the knee, but it’s all good. I am upright and that’s all that matters.
It’s a good day when you get out of bed and you are upright, people who have been confined to a bed understand this gift. People who have back problems and have been confined to a bed understand this gift even more! Being stuck in a hospital bed and told you can’t get up or you will die definitely not a highlight of my life. I almost want to make a top ten list of things I really wish I hadn’t heard from a doctor and You should be dead would be number 1 for sure. Still can’t figure out why the doctor didn’t brace us for that news! I mean seriously!
I really want some heated blankets today it’s cold, wifey opened the door to the house to leave and a gust of arctic wind hit her and she was breathless. She was not expecting it to be that cold in April. The weather just has not been that cooperative. I just want warmer weather in hopes that my joints won’t hurt as badly. I mean I get that they hurt, but right now they hurt so badly I want to disown all of them one by one!
My hamstrings are cussing at me…they do not like me and they remind me every time I stand up to do anything. I have the knee braces back on today, the physical therapy doc had me try a different KT Tape on Monday but I didn’t like it so I took it off last night. So double knee braces today! Which my hamstrings are cussing about that too! I have muscles that I did’t realize were there! Actually the funniest part in all this is my right thigh is numb, but I feel my hamstring! It is SCREAMING with pain! I am using ice packs and the heating pad alternating trying to relive some of the pain. It is odd to know your thigh is numb to the touch, but then to get feeling from the inside.
This morning wifey accidentally woke me up at 6am. She didn’t mean to! She rolled over and that’s all she wrote! I woke up and all my night sheep were GONE! They had left the bedroom, apparently all of hers were gone too hence why she was tossing and turning. I guess we need to talk to Serta..or is it Sealy? Which one has the sheep? Whoever it is I need more sheep at night! I felt bad because I got up, I was awake and when you wake me up then I’m awake awake. She felt bad for waking me up early, but it really wasn’t anything she did per se, she just flipped over. I just felt like it wasn’t going to help her get back to sleep with me tossing and turning when I knew I wouldn’t fall back to sleep.
I am using my spinal cord stimulator a lot right now because of the change in weather its been nice and warm during the day and COLD at night, the back and forth in the temperatures means my back HURTS! My neck hurts too, but unfortunately my stimulator doesn’t go that high. My allergies are also starting to kick into high gear now that spring has sprung.
I just hope my hamstrings have recovered by tomorrow or the physical therapist is going to have to do a lot less with me!
So we learned a few things yesterday during my physical therapy session a) my competitive nature will make me go farther than I probably should and b) my heart rate can and will go over 170 doing the exercises if I allow myself to be pushed. So I was working with the new guy, and he does know most of the medical history, he did know about the nuclear stress test, the tachycardia and the heart issues. What he doesn’t know about me is my competitive nature and that if you say to me oh you can do 2 more, I’ll do 4. So we got my heart rate up to 170 and today my hamstrings are sore from the exercises yesterday.
So I am resting today to allow everything to relax and repair from my session. Last night my knees kept buckling and I almost fell multiple times, so that wasn’t very happy either. I know part of that was that I was so tired from physical therapy, the other part of that was that we pushed my body too far. My heart rate was 170 and my oxygen levels were low and at one point I got dizzy. This is not a combination that is healthy. I am familiar with this combination due to the blood clot, but it’s not healthy. I also today am having some mild chest pains which I am chalking up to my increased heart rate yesterday.
So I talked to my doctor about my ER visit at the beginning of the month the cardiac testing that has been done and what will be done soon. He asked if they will be looking at the electrical element to the heart, I told him I don’t know yet. He suggested that might be the next step since the plumbing is looking good, but my heart rate is not, maybe looking at the electrical aspect of the heart is where we need to look since the blood pressure is spot on. So we shall see. It also looks like I will be coming off the blood thinners in the next month which I am HAPPY about!! YAY for BROCCOLI! I will be able to eat as much as I want without having to worry about INR levels! I am so excited about that you guys have no idea! I am going to be eating green smoothies and all the vitamin K foods, I might turn into Kermit the Frog for a bit from overdosing on greens..but I’ve missed being able to eat them to my heart’s content!
I was thinking about physical therapy and part of the problem with me is I am really competitive. As a child I did soccer, swim team and I did gymnastics for a short period of time. I mainly did soccer and swim team. If you tell me oh come on you can do 2 more, I will do 4 more just to prove you wrong, but then I’ll pay dearly for that. My heart rate going up so high and me almost passing out that was me being stubborn and not stopping when I should have. Later me almost falling and my knees buckling was not good. I need to learn to say no. I know my regular doctor was not happy you could read his face. There is a fine line and I went to far. The sad part was we didn’t do that much yesterday in the grand scheme of things which is why I think the new doc didn’t realize how far he was pushing me.