Beware of the Ides of March! Anyone who has read Julius Caesar is very familiar with the Ides of March and the assassination of Julius Caesar in 44 BC. So it has become common to warn others of the Ides of March (those who back stabbed Julius). So here is your friendly warning.
I have a busy day filled with getting my INR checked because that is important, I mean we need to make sure it’s within range, when I was in the ER I was at 2.0. Then I am getting my knee re-checked by the orthopedic doctor. I am hoping he will agree we need to just keep with the physical therapy, my knee is better. I need some more time. I need to keep working with the physical therapist to keep strengthening the knee.
There is a time for surgery and a time for physical therapy and I really feel like we have made real progress with the physical therapy and so I want to keep going. I want to give it some more time and see if we can get it back to where it needs to be or close to it. The bad part about today is NO COFFEE. I had to think twice this morning because making coffee is part of the routine and I went to make it and then NOPE! I couldn’t make it. I am going to enjoy my coffee on Thursday I am going to sip it slowly and remember how warm and comforting my coffee is, and how much I appreciate being able to drink coffee!
I did not miss having to go through all this cardiac testing..I did not miss it ONE BIT!! UGH! I do not want to think about the next step because I remember the next step, I remember how I have to lay still. I don’t like to be still like EVER! It will be okay because at least this go round I KNOW what I am in for, the first time I was scared because I did not know what they would be doing, this time I do. I know what the tests are like, what they feel like, what to expect and what we are going to find. There is great comfort in knowing I am going to FAIL these tests! I know it sounds odd that I know I am going to fail these tests and I am so calm about failing them, but I’ve failed them every other time. So why study?
I think internal clocks should have a snooze button! I mean you should be able to tap your butt and get an extra five minutes of sleep…or something right? I mean it works on regular clocks! So this morning my beautiful internal clock woke me up at 5 freakin’ thirty! I was like I think you missed the memo where we SPRUNG forward so in no universe does this even MAKE SENSE!! I should not be awoken THIS EARLY! This is too early for even the SUN to be up! I mean at least let the bird be THINKING of being awake before me. Nope everything was asleep, the sun, the birds it was DARK. The only thing that was awake was me and my funky breathing, I wear a mask for the sleep apnea and the mask was making a funny noise so I flipped over and adjusted it because if I was going to be awake I was NOT going to be annoyed by some cross between a whistle and a popping noise. So I flipped over tugged at my mask a bit cursed under my breath at my internal clock a BUNCH, and tried to go back to sleep.
I think my internal clock thinks this is a game because then at 6 freakin’ thirty it woke me up AGAIN, THIS time it was because my arm was asleep. So I re-positioned myself, cursed my internal clock some more because at this point I am highly annoyed that I have been awoke twice before my normal 7am and tried to go back to sleep. So then I woke up a third and final time around 7:30am which was much more acceptable to my terms and conditions as found on page 10 paragraph 3 line 4.
So I got up made some coffee which I won’t be allowed to drink for the next 2 days because I’m having cardiac testing on Wednesday and they don’t let you have caffeine 24 hours before the test! I would rant and rave about the injustness of this and have they seen me without caffeine but the answer is yes multiple times so I might as well save my breath! So I’ll do that test and then I’ll have a similar test done so I’ll have to go through this all again soon enough. Which I’m like eh whatever! It’s all good really! I need to get the answers on the crazy heartbeats so we can figure out the best treatment plan. I can survive without coffee I just choose NOT to!
Happy Pi Day!! I did not forget, I am excited! I always love Pi Day and today is Rounded Pi Day and if you don’t know what that means you are not a math nerd, but we love you anyways. Today is 3/14/16 and if you round Pi you get 3.1416 so its Rounded Pi Day. So enjoy a slice of pie in honor of Pi day!
So this was yesterday in a nutshell…I went to routine cardiologist appointment I get one way ticket to ER, I spend 9 hours in the ER before they decide I can go home, I go to bed around 1am, my body wakes up at 7am like usual……internal clock…I HATE YOU!!!!
Next month will be 6 months since I had my saddle pulmonary embolism and I need to have a repeat echocardiogram to see if my heart is back to normal size. So I had made an appointment with my cardiologist for this week before the chest pains started on Monday. So I went over everything with him. My EKG that they did in his office was normal, but the chest pains plus other symptoms he wanted to rule out another blood clot. I understood the reasoning because every time he asked me do you have this symptom it was yes, BUT…. so he said chest CT to rule out blood clot today.
So we went to the ER they took over an hour to even take me back to triage. I had another repeat EKG which was normal, they ordered the CT. They put me back out in the very full waiting room. So I finally went back after waiting for about 5 hours and they had an incoming trauma, so they had to wait for that to clear before doing the CT. So I waited some more. Which trust me when I say I totally get that waiting. I was stable and I would much rather wait for someone in a life or death situation because that was me almost 6 months ago! So we got the CT and then the doctor came back told me it was normal but now he was calling my cardiologist to find out if I needed to be admitted for more testing. Oh geez! In the notes he gave the charge nurse (and I know this because I was standing right next to him when he gave them to her) he said he just needed me cleared of a blood clot, then I was free to go. So I say okay, and we waited another hour for me to be discharged to follow up with the cardiologist. So I spent 9 hours in the ER.
Wifey laughed about only I could go in for a routine doctor’s appointment and end up with a 9 hour ER visit. At least I got a normal CT out of the deal! That should count for something….rigght? So I have more cardiac testing in my near future. I really need a punch card, I want something free! I am really happy that all my doctors are working to keep me healthy because I plan on living a LONG life. I mean I have a lot of goals to work on like farting on que. Yup I just said it! I tease the wifey ALL the time about that I am going to learn to fart on que so I can fart on her whenever I want! I haven’t quite mastered that skill yet, so I’m still working on it.
Saddle pulmonary embolism should have been the death of me, actually literally. Today I am having chest pains. Over the weekend my heart rate was not cooperating at all and running much higher than it has been, I see my cardiologist this week and I know I am in for testing. My best friend was teasing me about being a medical mystery and I just laughed. Today I have chest pains, so I check my blood pressure, it’s good. It’s not even high, its actually textbook normal. I checked my oxygen levels and pulse which the oxygen was good, the pulse was tachycardic again, but nothing new.
So I am taking it easy and trying not to get my heart working any harder than it has to! Be nice to your heart..you only have one..unless you are THE doctor……
*Circle of Life Song ques* NOOOO not that! I said Pain/Sleep Cycle guys not the Circle of life!!! *Record scratches, Pumba farts-he is a warthog afterall* Yo, Pumba take Simba and get out of here! Leave the door open too, you STINK!!
Okay now that we got the place aired out a bit! Last night I was exhausted, the good exhausted from spending time with family and the kids, but exhausted none the less. The issue when you have chronic pain is that often when you get exhausted the more you WANT to sleep the more your body said NO WAY JOSE! So I tossed and turned a lot of the night, my heart rate was running high a lot of the day (in the 140 range). My oxygen levels were decent from what I could tell. I have a feeling the cardiologist may suggest doing a halter monitor for me to get a better idea what my heart rate and oxygen levels are on a consistent basis since I’m only spot checking, and when I’m sitting I’m in a normal range, when I’m standing they are much higher for the heart rate and the oxygen levels while still normal tend to be on the lower end of normal.
So this morning at 5:30am I woke up in pain, but I didn’t want to get up. Then at 6:45am I had the all too familiar electric shock feeling on the bottom of my one foot. So I caved. I got up, I took a shower and now I’m ready for bed again. The simplest tasks are exhausting for me still. I never thought I would seriously debate do I have the energy for a shower today? Now that is a question that I frequently will ask myself. Do I really want to shower? Do I have the energy to shower? What else is on the agenda for today? I actually try to shower on days where I have nothing on the agenda because it takes so much energy.
So I took my shower combed my hair, got dressed and then thought maybe I should change back in my PJs and just climb back into bed! That sounds like a much better idea today! But the coffee was made so I decided to drink my coffee and see if I felt better after my morning cup. I may still decide to ditch real clothes and go back to bed! I am supposed to go to a meeting this morning but I’m not sure I can muster the energy. I really feel like I haven’t slept however my Sleep Apnea machine told me that I got decent sleep so that’s good news. That’s another piece of my personal puzzle often I will sleep rough because of the pain and then the sleep apnea will cause me to sleep even worse.
I changed the format of the blog a bit to try and make it easier for people to find old posts. I realized that if you are trying to find posts on specific topics it might be nice to search by keywords. Hope that helps! It was also interesting to see what I write the most about, which is more which tags I use the most. Some tags I think I needs to use more! Put it all in prospective for me!
Enjoy your day! Enjoy your cup of joe! Compliment someone today! Attitude of Gratitude goes a long way!
So ever since that deadly blood clot..well the doctors said it was deadly, I say it was just a pain in the butt blood clot personally! My heart rate has been a hair high. So tachycardia is when your heart rate gets to be above 100 beats per minute and this morning after my shower I wasn’t feeling good so I checked it and I was going at 140. Yeah… just a little on the tachycardic side of life. My oxygen levels at that point were 97% so that wasn’t too bad. I have been noticing an increased amount of fatigue and so I have been spot checking my heart rate and my oxygen levels and what I am noticing is that my heart rate will be just over 100 beats per minute, but the oxygen levels will be at 88% which is not healthy. So of course from being in the hospital with that almost deadly blood clot I stop whatever I am doing, take some slow deep breaths to bring my oxygen levels back up to an acceptable range. What I’m wondering however is how often my oxygen levels are dropping down to unhealthy levels without me really realizing it.
I know that sitting down my heart rate has been in the normal range, but pretty much as soon as I get up, I am tachycardic at this point, but not as bad as I was when everything first happened. I used to always be in the 130-140 range, now it seems I’m only in that range when I am really active. Which of course should be interesting at physical therapy this week, because they are going to try rehab exercises with extreme caution of course. If the heart rate won’t cooperate then we will go back to the drawing board and do more of just the stem and manual manipulation/massage.
April will be here soon and I am actually looking forward to having the echocardigram done so we can see what is up with my heart! I want to hopefully get answers, and get some more direction on how to proceed from here. Of course there is always risk that with the test there will be more questions than answers, but I am willing to take that risk at this point. I know there is something rotten in Denmark, I’m just not sure what!