Tag Archives: wifey

Let me sing you a song!

So talking in my sleep has been going on since I was a child. I would get embarrassed at summer camp because I would talk in my sleep and the other kids would tease me. I have always talked in my sleep, I can’t help it. If I could I would, but you get what you get with me! I have some funny stories from college years when I would talk in my sleep. I scared the crap out of one of my roommates when I whispered her name in my sleep, she wakes up asks me what I need/want, I whisper her name again she asks me again what I want, I shout her name, she shouts back and I start snoring….needless to say I was asleep the entire time.

So I am used to people complaining about my talking while slumbering. I shrug and apologize. I have had the sleep tests done and was diagnosed with sleep apnea. I wear a cpap mask and use a cpap machine every night, and even with that I will still talk on occasion. Well in the last couple of weeks apparently I needed to raise the bar…I have decided that talking in my sleep is not enough. I need to start singing in my sleep. My poor wifey tells me the other morning that I was singing VERY LOUDLY to her in my sleep. Of course I laugh at her and ask if I was at least singing in tune, this does not amuse her. She said she kept gently elbowing me to get me to stop which would quiet my concert for a bit, but then I would start again much to her dismay.

Thankfully she understands that I was not doing this on purpose and she is very loving and did not try to smoother me in my sleep…of course with the cpap mask she would have had to remove it first because placing a pillow over the mask would not have done much good. So we have no idea why I have changed my normal routine of just talking in my sleep to now singing in my sleep, but I find it hilarious, my wife not so much. Of course I’m sleeping through it, she is waking up unable to sleep so I can see why this would be troublesome.

My sleep disorder doctor does believe there is something more going on and we are working on getting more testing done, but we hit a roadblock with the insurance company. So until we can get them to approve the testing he wants done the wifey is going to have to deal with my singing in my sleep. Of course since I know that I am wearing the mask I am making sure to sing loud enough that she can enjoy it, which I think is very kind! I mean if I am going to put on a personal concert at 2am I think she should be able to enjoy every second of it…don’t you agree?

Crazy

Why be normal? I mean normal is overrated right? This week has been a lot of crazy feelings and wanting to jump through the phone. There has been a lot of turmoil from one person not doing what they said they were going to do 3 weeks ago and it blew up in my face this week. So I spent the majority of this week scrambling to try and get it fixed.

Of course on the upside of my week Mom took me clothes shopping last week and I got to wear shirts that actually fit and that made me feel good. I have been losing so much weight that the clothes that I currently own are getting bigger and bigger on me. Mom told me it was time to get some shirts that fit so we can start donating the biggest clothes again. I had already dumped my closet of one size and soon I will be ready to do another dump. I am down about 120lbs. I am feeling proud of my accomplishment. I am over halfway to my goal weight that was recently given to me by my doctor.

I just wish my pain levels would go down, even a little! That first year the stupid doctor who will not be named blamed my weight for my pain, well guess what doc? I’m a lot lighter and I am still in pain. It’s also fall which means the temperatures are going to start dropping and while I welcome the cooler temperatures I remember how my hardware didn’t like the cold last year!

I am working hard in physical therapy to build up my muscles as I continue to lose the weight so I know that I have a healthy body. I am eating healthier, drinking lots of water and taking care of me. Next month we are going to look into doing the genetic testing for blood clots and hopefully find out if I have a genetic disposition for blood clots which several of my doctors and myself believe I do. While that’s not the best thing in the world I would rather know for sure than guess. Having a massive blood clot was one of the scariest moments in my life and I just want to know if that could happen again. Of course just because I have a disorder doesn’t mean it would happen again, it just means there is the possibility. Also knowing we can take different precautions so the likelihood of a repeat is less.

When you have so many major medical problems its about knowledge and prevention. You come to understand that things in life are uncertain and you do your best to prevent what you know could happen. You don’t stop living your life, you just make subtle changes to try and prevent things. I stopped eating high vitamin K foods while I’m on the blood thinners because it makes life easier right now. Once I’m off blood thinners I probably will be more aware of how I eat high vitamin K foods knowing they thicken the blood.

Life is short. This morning we were laughing and giggle and I was thinking about how 3 years ago we were getting ready to be married. Now wifey is stuck with me and has stood by my side through all this stuff. She’s a good egg. I’m blessed. We have a good life. It’s crazy, it’s silly and it’s full of laughs.

NAPS!

Okay fess up who doesn’t like a good NAP? I mean I really think the Spanish have it right with siestas in the afternoon! Take a nap go back to work, you feel refreshed! As a child I stopped napping at 6 months which my poor Mom had to put up with, as an adult I take a nap about everyday now…I think I am making up for lost time…sorry Mom! My Mom really is a saint! She takes me to my appointments, helps with taking me to do odd errands like going to the bank, post office etc. When she jokes about that I am her full time job she’s not kidding!

I am really grateful for my Mom and how much help she has been these last couple of years with getting me to these appointments. I don’t know where I would be without her. It’s been nice to spend some extra time with her. Of course when we spend all this extra time it doesn’t feel like quality time because its always around medical appointments. I am seeing this doctor or that doctor, I’m getting this or that test run. So every once in awhile she and I will pick a day and just go out. We’ll spend some quality time together that is not around some medical appointment or procedure.

I know that my whole life is not going to be based around doctor visits and medical testing but right now that’s what it feels like and it’s exhausting! I have all these pills to take, all these blood draws and tests plus physical therapy. I’m always at this doctor or that’s office for some sort of check up. I have this test or that test coming up. My calendar is already filling up for December and we haven’t even hit September yet… life of anyone with a chronic illness!

Gratitude

When was the last time you stopped and made a list of 5 things you were grateful for? So often in the hustle and bustle of our day we forget about all our blessings we have, we are surrounded by gifts from God. I know especially on bad days we can get distracted from our attitude of gratitude really easily and focus on all the negative but those are the days we need to really stop and think of 5 things we are grateful for the most!

I know that with my surgery I have been really pre-occupied with everything surgery for the last couple of months and my wifey has definitely felt my stress. I knew my surgery was going to go well, I had no doubts about that part of it, but I was still stressed over the details. I am a very detail oriented person and I like to have all the ducks in a row and when one duck is not in that row I get out of sorts.

So I challenge everyone to try this week and take a few minutes to list 5 things you are grateful for everyday. Keep that attitude of gratitude alive and remember that life is short and you are too blessed to be stressed!

Tooblessed

Holy allergic reaction BATMAN!

So I had a horrible reaction to the steri strips the surgeon used to close my incision, so yesterday I called and the nurse told me to carefully remove the steri strips. I started taking benedryl and this morning my skin looked a LOT better already! So I am hoping that another day of benedryl will make my skin start looking more pale looking (aka normal) verses the fire engine red it looks now. Of course once it starts calming down I’ll have to put some antibiotic cream ¬†where my skin pulled off with the steri strip.

So the good news in all of this is the incision itself looks awesome! It is nice and closed and should finish healing nicely! I just wish I didn’t have the allergic reaction on top of it! I also am going to tell the surgeon no more steri strips because this reaction was so bad this year that if there are any more surgeries we’re going to have to think of something else.

Besides the allergic reaction healing is going pretty well. I am trying to get used to how my throat feels, the first few days I felt like I had a lump in it, as the swelling as gone down the lump as gotten smaller! The biggest challenge is not to try and look DOWN! You never think about how much you look down until you can’t!

I was talking with Mom about all the metal in my body now and I am racking up quite the list! Every time they ask I start at the head and make my way down and the nurse has to write fast to keep up with me! That is the life with chronic illness! I have to start with the head and move down or else I will forget something, I find that is the easiest way for me to remember everything. I was going over everything and my mother in law told my wife that I am almost as bad as my father in law!

I just keep reminding myself to take life one day at a time. I keep taking one challenge at a time. I just have to keep the big picture in mind. I think life gives you challenges and you just have to roll with the punches and tell jokes.

Hey sexy I like your neck collar!

So I’ve heard a lot of pick up lines in my life time, but today’s took the cake. So I was with my Mom and we had stopped by the grocery store to get my Dad a organic yogurt that only 2 grocery stores in the area sell, so we had walked through and picked up a few other items. I promised the doctors that I would be up and active after surgery so we wouldn’t have a blood clot so today I would walk a bit and then rest, walk a bit and then rest you get the picture. So we were checking out and I kid you not the checker tried to use my neck brace as a pick up line…..

Guy- So how long do you have to wear your collar?

Me- Oh I don’t know yet.

Guy-When did you have to start wearing it?

Me- I just had neck fusion surgery last Wednesday and if my back was any indication I’ll be in it for awhile…my back was fused 2 times once in 2014, then in 2015 and it’s still not fused.

Guy-WOW! Yeah I had to wear one of those collars for a class I was taking and we had to wear it for the whole class period and it was really annoying! You have to turn your whole body when you move, and he starts demonstrating for me (as if I don’t have first hand knowledge here….)

Me- Yeah it gets to be a real pain when you are trying to look down and you remember you can’t!

Guy- I bet! I don’t know how you have been able to keep that one on the whole time, did they at least give you a soft one too?

Me- Yeah I have a soft one to sleep in

Guy- That’s good I would hate to think you were trapped in that hard one all the time, at least you can switch between the two!

Me- Yeah, it helps

Guy-I hope the next time I see you, you are free of the collar, or at least in less pain. But no matter what I hope I see you the next time you come in!

 

Yeah there is friendly and then there is I want your number and trust me with the body language this guy was I want your number! Too bad he’s not my type! #Prettysuremywifecouldtakeyou!

Who’s afraid of stress?

Sickthisoften

So this is going to be a LONG week for me of appointments which I dislike because I prefer to have down time when I can. In the shower I was thinking about my week and the appointments, I couldn’t remember one. I’m thinking and thinking and it just wouldn’t come to me and it’s frustrating because I KNOW I HAVE ONE MORE! So I get out of the shower, get dressed the whole nine yards and look at my phone and it’s DUH!

So the answer becomes what do you do when you are sick/have a chronic illness/multiple chronic illnesses and have a busy week? REST WHEN YOU CAN! I have been taking a nap every chance I can get! Yesterday I took a 2 hour nap and it was GLORIOUS! I think the wifey was surprised because I have not taken a long nap like that in quite some time, but hey I was dead to the world sleeping and enjoying it, so I SLEPT! I have also been making sure to go to bed on time, waking up when my body wakes up which internal clock and I are on the outs…5:30am is way to early, but that’s what I am getting right now…and making sure to do my allowed amount of exercise daily. I am doing my physical therapy exercises as well.

We have switched from the knees to the back so I am incorporating the back exercises back into my routine more often too (I never stopped doing the core/back exercises, but now they are getting done more frequently again). Still working on the knees. Life is good. I am also doing my morning devotion, making sure to take some time out each moment to try and quiet myself which is hard right now because I am so busy.

Sometimes it’s hard to just take a moment and remember to just breathe. Just relax and be in the moment. Shut out everything that is going on. It’s good. Take just a moment and breathe. Take just a moment for yourself. You can do this, you are worth it. Just a few minutes each moment.